I hope you all had a lovely Christmas and celebrated the new year with new beginnings.
I had a wonderful Christmas with my family and a friends. Filled with yummy food and lots of fun and laughs. Also working in retail was a busy time for me.
Its been a busy start to the year with my job and being on placement in Community Service taking up most of my time. But I still managed to try to catch up with family and friends (even if I don’t see in person Facebook is excellent for this. )
An update on my health. First I want to mention that its coming up to 5 years on 25 January since I had the Pituitary Macroadenoma removed via Transsphenoidal Surgery! Wow the time has surly flown with a few ups and downs. Coming up on February 12 is my 6 monthly checkup with the endocrinologist. I will schedule a boodtest in the next week or 2 with a visit to the local doctor for my results. My anxiety has been really bad but I try to keep that under control with Rescue Remedy and Exercise. Although my weight , as mentioned in my previous post, has dropped to 43.5 kg. I think because I have a few things on and no time to rest. Apart from the anxiety, I have been a tired, low blood preassure and feeling dizzy or confused sometimes. I think this is mostly symptoms of the anxiety but I will surely mention this to the endocrinologist on my next visit.
On a happy note. Coming up in February I will be also be turning 30 and have a small celebration with my family . I’m really looking forward to having a girls night out filled with fun and laughs.This will also be 10 years with my bf and 4 years of sharing my life with my cat. They are my best friends, and i’m so grateful to have had by my side to love, care, support and relax with anytime I need that pick me up and comfort.
I’m very thankful to have love, comfort and support from my family and friends throughout my journey and lifes ups and downs. I hope you all have the support and love from similar people in your life.
That’s it from me for now. I hope you are all traveling well on your journey. Thinking of you always. Sending Peace, Hope and Harmony to you all. Will update again soon.
I lay in the hospital bed for a few days with my Mum and Jeremy taking it in turns to be at my bedside as I didn’t want to be alone. I felt so tired, sore and unhappy. I remember asking for many pain relief medication as my whole face was quite painful. The regular blood test were quite painful and having a fear of needles made the process even worse for me and for the nurse taking my blood. I had regular visitors coming and going which lifted my spirits. I was quite relieved when the doctor came in to check on me 2 days after the Transsphenoidal Surgery and said I would be getting the tape removed off my nose and i’ll be going home the next day. A few hours later a nurse came to remove the tape and to reveal a very swollen nose with a slight bruise underneath my right eye. The remaining padding in my nose will be removed in a few days. I am quite looking forward to this. It’s quite uncomfortable but glad to at least have the tape off my nose.
For the rest of the afternoon and evening I spent relaxing with my Mum and Jeremy with a few visitors dropping in. I was a little emotional at night because I was giving my Mum and Jeremy a rest and spent my last night in hospital by myself. After a restless sleep, waking up to the nurses with pain relief medicine, I couldn’t wait to be going home late morning. I gathered all my stuff together, freshened up and waited for my Mum to pick me up.
On January 25th, 2007 I was admitted to the Monash Medical Centre in Clayton at 11am. My family, Jeremy and close friends were by my side while I got prepped for brain Transsphenoidal Surgery. I remember getting changed into the gown and laying on the bed while I waited to be called in. The nerves were getting the better of me. I was cold, scared and a little teary -eyed. I had a few nurses coming and going and my loved ones keeping me occupied prior to Transsphenoidal Surgery. “Ok Miss Graham they are ready for you”. Being wheeled up the hallway and towards the theater with my mum by my side. This was it! Anesthetic taking affect. Getting very sleepy. The Transsphenoidal Surgery last a few hours for the PituitaryProlactinMacro-adenoma, a benign tumor the size of a golf-ball, was removed via Transsphenoidal Surgery by the surgeon Dr Pullar.
Several hours later, on a high dose of morphine the nurses woke me and I got wheeled into a highly dependent recovery room. I was so relieved to wake up to the smiling faces of my loved ones. I had made it! Although I felt very uncomfortable with tape all over my face and something stuffed up my nose. My mouth felt like sand and it was quite dry as I couldn’t breath through my nose. I was also unable to drink many fluids for a few hours.
I attended an appointment with my Mum to see a new Endocrinologist Dr Burger in search of another opinion on the current findings of my blood tests. We sat nervously waiting to be called in. Dr Burger saw us within a few minutes of waiting. I explained my current situation with my Prolactin levels and all my treatment so far that had been unsuccessful. He read through my current blood test results and other medical history provided by my local doctor, previous endocrinologist and Dr Pullar. Dr Burger paused with a serious look on his face. He took of his glasses, looking at Mum and I before he spoke, then delivered the bad news. “Unfortunately you will need Brain Transsphenoidal Surgery to remove this tumour in the next couple of months. There is no other option and it’s quite dangerous to your health if its not removed!” I took a minute to comprehend what I was just told. Then Mum and I just broke down. Even Dr Burger shed a few tears. The next few minutes of this consultation was a bit of a blur because I couldn’t control my emotions. Dr Burger explained the procedure involved through Transsphenoidal Surgery (Brain Surgery through the nose) and I would require an MRI scan and an appointment with Dr Pullar prior to Transsphenoidal Surgery .
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