Archive for the ‘Prolactinoma Follow-Up’ Category

Brighter Art Therapy Future

Hello 2014. The year for a healthier brighter future. Thanks to those following my journey the last 10 years, and welcome to the newcomers to my website. I hope you gain knowledge and inspiration to keep going on your own journeys. If your currently going through some negative and unhappy periods,  just remember that it will even out to more positive and brighter paths. These rough patches are slight obstacles that you don’t need to go through alone,  and Toll-Art Therapy is here for your support and inspiration.

On a slight negative obstacle I have had my recent MRI,  blood-test (which was quite stressful) prior to seeing the endocrinologist for my 6 monthly checkup. I was a little concerned about what my results would show. I have had a few dizzy spells,  feeling lethargic, stressed and severe periods of anxiety. Like any visit to the endocrinologist, I remain positive and hope for great news. Unfortunately the results weren’t very good. According to my blood-test my stress levels Cortisol were extremely elevated since my last visit ( from 586 nmol/L ~ 655nmol/L ) and the Prolatin levels increasing at a higher rate than over the previous few visits (from 1474 mIU/L ~ 1996 mIU/L ). Also my cycle disappearing for 14 months was a concern to the specialist. Being unhappy with the results, both myself and the specialist, the next part of my journey includes some tablets to take over the next 6 month and consider the pill or a chemotherapy medication  to lower my levels. Another concern for the specialist is to attempt to gain about 5-10 kilos to increase my fertility to help with starting a family. (This is definitely the last thing on my mind. I do not want to have a child. I don’t have the maternal instincts to start a family. Working in Retail certainly shows that it puts me off even more when I see feral kids and screaming babies that get on my nerves a great deal.  )

To deal with these not very good results, I have chosen to alter my diet to improve my health, search for alternative to reduce my stress and anxiety as best I can, and perform more Art Therapy skills for healing. Also to reduce any negativity from my environment being socially, mentally and physically, by bringing more positive people, thoughts and energy into improving my brighter Art Therapy future.

Until my next post, I wish you all the positive peace, hope, love and harmony for your journeys. Thanks again for being apart of the last 10 years of  my journey and may the next part be a brighter and more positive path.

 

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August Checkup

Its been a busy 6 months. I’ve had some ups and downs on my journey. Where to begin. I’m working closer to home which is great. Less time spent traveling to and from work and more time to relax before work. I’m loving my new workplace and have made some great friends. I also get to spend extra time with my 4 legged, furry, fluffy child and my best friend Benji. (My 6 year old cat). A great stress reliever and an excellent listener.

My studies and coming along nicely. I plan to be qualified end of the year. Studies have had a few delays due to other priorities. Its a great feeling when you receive excellent feedback and encouragement from the teachers, and realizing the skills I’m learning I naturally put them into practice in my daily interactions.

There was another death in my family, with the passing of my last living grandparent. Another tough family time but with no arguing the funeral went smoothly and the family came together to support each other on the day. Cherish your family while they are alive. Holding grudges are those little things that can be the obstacle that create distant forever. The past can’t be changed. Live in the now and create your journey towards a bright future. Having family who love you for who you are and support you in health and achievements are those positive souls we all need in our life. Removing negativity people from our lives and stay close to positive people, can influence positive energy into your own life.

On a positive note I reduced and eliminated my sugar intake and have been eating healthy with my regular daily exercise and feeling great within myself. I’m getting my anxiety under control, although some situations it tends to escalate but I’m learning to manage it better. Apart from having the flu for several weeks, which is almost gone, I have been reasonably healthy and feeling more positive. Its come to my regular 6 month checkup with the endocrinologist to see how everything is going. Having my regular blood test, will the results show up excellent, as I have been feeling great. With the anxious wait finally over, I attended my 6 month checkup all positive and wanting my results to  be great. To my surprise my (Cortisol / Stress hormone level has risen to being extremely high at 586 nmol/L) and (Prolactin has risen again to  a high of ~ 1474 mIU/L). With my endocrinologist not to pleased with the increase has recommended taking hormones possible from my next visit and have another MRI to see if there is any changes to the pituitary. Also another recommendation to improve my hormones is by gaining about 10kg. (I’m sorry but i’m not going to gain weight and get fat in the hope that my hormones will improve. I’m happy the weight I am and I feel healthy within myself). I’m going to try to regulate the hormones another way by doing some research and seek advice from a Naturopath or health professional.

Over the next few months i’ll be focusing on my studies, working, controlling my anxiety, being healthy, staying positive and regular updates to Toll-Art website and concentrating on Art Therapy.

I hope your going well on your journey and I am truly grateful of those following my journey. I wish you all Peace, Hope, Harmony and good health.

 

 

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My results are good

How are you all today? My journey is continuing in a good direction.  I felt positive about my results. I have done my best with limiting sugar from my diet, by giving up chocolate for 5 months. ( I’m having some chocolate now, but not as addictive as daily!) Also my stress / anxiety levels are up and down depending on the circumstance, but with the help of Rescue Remedy and love and support of special people in my life I get through some obstacles that occur. Now onto my visit to the Endocrinologist. i’m very pleased to say that in 6 months my Prolactin levels have only increased by 55 (from 1040 ~ 1095. This is a small amount meaning that although its increased its stable but still well above the regular range of (0-500) .  This is really good for not being on any medication for my hormones. The endocrinologist is happy with the stability of my hormone levels, although has asked if I can gain 5-10 kilos to be more healthy in the next 6 months. I’m sorry but that is one thing that does annoy me when she wants me to be fat to be healthy. (Sorry if that offends anyone) but i’ve been slim all my life and the weight i’m at now is healthy for me, so unfortunately I refuse to attempt to double my food intake to gain weight and expand my waste-line to be healthy in the endocrinologists eyes!  I feel healthy, exercise daily, eat healthy, splurge occasionally and enjoy being happy within my own skin. I’m enjoying life. I have a great job working with the community, I’m a third of the way through my studies to becoming a counsellor and sharing my story with everyone who visits my site gives me joy that I can assist those with similar health concerns and those interested in my journey. Until my next post, I wish you all good health and harmony for now and the future. Just remember you are never alone with your troubles, there is always someone by your side whether it be family or friends to help you through your journey to happiness.

 

 

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Busy Times Ahead

Well its coming up to 5 and a half years since my surgery and i’m feeling like things are improving. In 2 months i’m scheduled for my next appointment to the  endocrinologist. I’ll have my blood-test at the end of next month and fingers crossed my levels are keeping under control. I’m keeping positive as I think it helps in some way for positive results. I hope!  At the moment everything is going well for me. I’m keeping busy. I’m working in retail and doing art projects with the local community.  I’m also studying Counselling, looking to be running creative classes in the local community and planning to progress with my new career path.  The next few months ahead will be keeping me busy, with no time to stress about my upcoming appointment. Although with lots going on i’m still trying to keep my anxiety under control by eating reasonably healthy, taking vitamins and rescue remedy. Also I’m trying to keep my stress and anxiety under control by  listening to some tunes to relax, chatting to friends and family and those with similar health issues, and doing creative projects. I’ll write more again soon. I’m sending you all peace, hope, harmony and good health for the coming months.
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Great News!!!!

Hi everyone,  I hope your all having a lovely day and Welcome to those new to my site. If you have any questions, suggestions for new content, any concerns, comments etc, do not hesitate to contact me via the contact page, GuestBook, or on Facebook / Twitter. Please browse the pages at your leisure and enjoy Toll-Art Therapy.
Ok now here’s a brief update on my progress. (Please refer to previous posts for further background knowledge and information) . I had my most recent visit with the endocrinologist. I attended the appointment on my own, with excellent news. All my results are normal (for the first time in many years)  with the exception of the Prolactin levels dropping by 200, but still out of the normal range but stable. I have lost 2 kg, which is a little concerning but its because of my stress and anxiety. The endocrinologists solution ( i’m not to pleased with) is to gain 5-10kg to have a better chance at fertility (although a child can risk my health) and being healthier with my hormone levels. Grrrrr……..so frustrating when she doesn’t listen when I have told her several times I do not ever want to have kids!!!!!!! Also to try and reduce the anxiety and stress , which has increased over the past few months, is to get some counselling,  or as a second option is to go on anxiety medication (which can elivate my hormone levels). I will have a think about both options and continue to use Rescue Remedy.
Another positive is my next appointment will be in 6 months and no MRI every 12 months, instead will be in 18months time!!! Yay!
That’s it from me for now. Will update you again soon.
I wish you all Peace, Hope, Happiness and Good Health.
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Routine Visit to Endocrinologist

Good morning. Birds chirping,  9 degrees and the sun is trying to peer out from the clouds on this overcast day in Australia. Going to be a good day :-)
I hope your all going well on your journey. Stay strong and just know that there is always support from Toll-Art Therapy.
Here’s an update on my journey. I had my routine visit / check-up with my endocrinologist. I took my mum with me for support, as I never go to these appointments on my on because I don’t know what to expect.
My results are reasonably good. MRI scan showed no changes to the Pituitary Gland apart from the abnormality from surgery / tumor removal, which is normal.
Now for the blood test results. ~ Thyroid – good, Growth Hormone – good , Cortisol – levels have reduced from 681 nmol/L to  573 nmol/L, Prolactin – level up again (range 0-500) from 1226 miU/L to 1319 miU/L  :-(
The endocrinologist isn’t to concerned to much as levels have only changed slightly. Still not good but will keep monitoring and any new symptoms or increase in current symptoms to notify the endocrinologist to discuss medication.
Also doing the routine check of my blood pressure which is normal.  The endocrinologist is a little concerned because when I stepped on the scales my weight has reduced from 47.5kg to 44.5kg (2 Kilos is not healthy for my frame. ) I don’t mind because its easy to find clothes that fit but its not intentional. I exercise for at least an hour daily, drink 3-4 cups of herbal tea, eat regular meals with the occasional splurge in chocolate / sugar etc. depending on the cravings.
Although my frame of mind is not good at the moment. My anxiety is really bad sometimes and Rescue Remedy Drops and Pastels help when its hard to cope but I think I might look into some relaxation methods including possible yoga or meditation classes.
At the moment I have taken on 2 courses of study being Community Service and Counselling. I’m enjoying learning new skills including trying to help yourself so as you can assist others in crisis, but the Anxiety has increased with this extra pressure. I need to get the Anxiety under better control.
Well that’s it from me for now. Better get back to my studies. I hope for some positive results in a few months. My next endocrinologist appointment is scheduled for February. I’ll keep you updated on any other changes.
I hope you all are going well on your journey. Also hope I am helping people further by telling my story. Any feedback or comments regarding my content is always welcome. Feel free to visit my Facebook and Twitter fan pages.
Peace, Love, Harmony and Hope to you all.

 

 

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My Healthy Journey

As we come to the end of March quite a few things have happened. Where do I start? Hmmm…….ok.
Well I worked for 3 months (on trial) at a new job but unfortunately things didn’t work out and I have been unemployed for just over a month. That’s all good though as it has given me a bit of time to get back on my healthy journey. The job was causing me a great deal of anxiety for 3 months so I have been trying to get that under control naturally.
I did my Certificate in Reiki 1 and I will concentrate on doing Reiki 2 at the end of the year to help with my healing. Also i’m going to be learning more website designing /marketing techniques  as well as job hunting once again.
Its about that time for my next visit to the endocrinologist tomorrow for my 6 month check-up. (Although I have reschedule to end of May due to a few other issues in my life well out of my control) I still had my bloodtest on the weekend and will probably need another one again before my next appointment with the endocrinologist. Anxiety not good so i’m trying Rescue Remedy drops and lollies.
I had a visit with my local doctor yesterday for some prescription medication, and I also got a copy of my recent bloodtest. “Thyroid – good, Growth Hormone – good , Cortisol – at the highest end (range 138-690) my levels are: 681 nmol/L, Prolactin – up again (range 0-500) my levels are: 1226 miU/L
Nothing to worry about I don’t think.Will contact the endocrinologist and see if I need an earlier appointment before May. Will keep you updated on my progress.
I hope you all are going well on your journey. Also hope I am helping people further by telling my story. Any feedback or comments regarding my content is always welcome. Feel free to visit my Facebook and Twitter fan pages.
Peace, Love, Harmony and Hope to you all.
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Check-Up October 2010

Hi everyone.  Well I had my regular check-up with the Endocrinologist this morning. Let’s just say I did a little happy dance on the inside. YAY!!! WOOOHHOOOO!!!!!! My recent blood test from the 18th of September was excellent. My Prolactin levels have dropped rapidly from 1200 miu/L to 686 miu/L. The levels are almost within the normal range of 0-600 miu/L.  (They haven’t been close to this since 2007.) All my other hormone levels eg. FSH, LH, E2, Cortisol, GH, IGFI, TSH, T4 and T3 are perfect. Although my growth hormone is a little lower than it should be, the endocrinologist is not to concerned as it’s more important in childhood. The MRI scan showed that everything is looking normal with the Pituitary Gland, only a small section left on the side due to the tumor removal. Maybe all the eating healthy (Gluten Free / Wheat Free / Dairy Free) , with the occasional splurge of Cadbury’s Chocolate, and taking Zinc, Magnesium and St John’s Wart vitamins have mad some difference to my results. Will most certainly keep it up!
Before my next appointment the endocrinologist has given me a referral to see a Gynocoligist as there may be a slight problem with my ovaries. Nothing too worry about as yet. Also I will have a regular blood test testing all the hormones again.  The overall Best News is that my usual check-ups with the endocrinologist are every 3-4 months. Now my next check-up will be in 6 months. Hopefully it may turn into once a year check-ups :-)
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Prolactinoma Follow-Up

I had a follow-up  MRI scan performed at the John Fawkner Private Hospital.  This scan of the Pituitary macro-adenoma showed an increase in size of the lesion measuring 2cm x 2cm x 1.5cm. There is evidence of some compression into the optic and sinus chiasm. Not Good!
Another appointment with Dr Pullar to see what to do next.
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